That word brought tears to my eyes. Such a little thing, and yet a such big emotional impact.
We are spending a few weeks living with my dad – helping him with daily care, giving my sister a few moments of respite from her herculean job of care giving.
I was initially nervous about staying here with him. I was not sure about his abilities to function and interact. I worried that he might not want my help or that I would not know what to do. I haven’t lived close to my elderly grandparents or parents, so am not very comfortable with their lifestyle and needs.
My dad suffers from Parkinson’s disease, dementia, and alcoholism. My dad who was always the extreme self-made-man, strong character and body, intelligent, and absent of affection has become a very dependent, weak, forgetful… sweet and appreciative old man.
He certainly has his moments of confusion, frustration, and stubbornness, but in general, he is not the rough, tough, intimidating father he was before.
Caring for my dad is not easy. It requires patience, flexibility, research, and a lot of new perspective. It means different standards, norms, and routines that would have been unheard of in earlier years. Lucid conversations mixed with confused anxiety. Time, worry, initiative, firmness, creativity, and continual second-guessing and questioning decisions and choices.
Dad’s care is the epitome of living with tension – giving respect and still enforcing new restrictions, allowing for independence and restricting freedoms, offering choices while simplifying options, providing quality of life and ensuring safety, protecting privacy and dignity while also hovering with care.
I do not have any official training for the role of elder care-giver, but care giving is training me. I am learning to slow down… lowering my accomplishment expectations for each day, choosing my words carefully and enunciating as I speak, walking protectively at his side, moving with tenderness and intentionality. None of that is easy for me.
The most important lessons are a repeat of earlier experiences – living fully with the realities of each life-stage and finding contentment there. Just as I learned to overcome fears, serve others, and treasure special moments with infants, toddlers, teenagers, and adult children, I can do the same with my dad.
Every person is important. Every life is valuable. I consider it a privilege and a joy to care for him. I am willing to help my dad without expectation of getting anything in return, but every now and then, I receive a special gift – a “thank you” or a “dear” – from a special person who has nothing more to offer. It is enough.
What has been your experience is caring for elderly loved ones? Do you have any tips for me?